21 August, 2013


An estimated 400,000 people in the UK suffer from interstitial cystitis/painful bladder syndrome. This September, The Cystitis & Overactive Bladder Foundation unite with interstitial cystitis sufferers in the UK and around the world to encourage them to share their personal stories of living with interstitial cystitis/painful bladder syndrome. We aim during this month to raise awareness of this life debilitating condition, give a voice to the people who suffer in silence and raise funds to bring the prospect of a cure ever closer.
Says Professor Pickard of the Cystitis & Overactive Bladder Foundation Medical Panel “I hope that IC awareness month increases general awareness of this very poorly understood condition both among medical professionals and lay people.”
Interstitial cystitis is defined as a chronic inflammation of the bladder wall. The inflammation triggers symptoms of urinary frequency, sometimes as often as 60 times a day, urgency and excruciating pain making even simple tasks impossible. At its worst, the disease causes ulceration of the bladder lining and there is at present no known cure.
The Cystitis & Overactive Bladder Foundation are sponsoring research into the condition at Newcastle University giving hope to many who live with the disease that there will one day be a cure. They have recently launched an on-line survey, the first of its kind, into bladder illness in the UK
Says Susannah Fraser, Communication & Liaison Officer at The COB Foundation “During September we encourage our members to share their experiences of IC. We would like them to distribute our leaflets and posters for display at their local hospital and  write to their local MP enlisting their support to raise awareness of interstitial cystitis. We hope members will be able to hold small fund raising events to provide more funds for research”
Learn more about Interstitial Cystitis and take part in our on-line survey by visiting our website at

The Cystitis & Overactive Bladder Foundation
Kings Court
17 School Road
Hall Green
Birmingham B28 8JG
Advice Line: 0121-702-0820

Become a Member

Find Out More >

Help us to help you

Find Out More >
Join Now

Join Now

Apply online >